I assume some readers of Carrying The Black Bag are personally affected by chronic health concerns either by being personally affected or having a loved one so afflicted. Or perhaps, like me, you are just interested in what can be learned about the human condition by looking closely at someone affected by a neurological disorder. There is always benefit in observing model behavior that we can emulate.

In any event, I wish to link the reader to additional information on medical research, caregiving skills, resources, and general information on illnesses described in my book. This may at least be a starting point to learn more about various maladies and how best to cope with their effects.

Parkinson’s Disease

National Parkinson Foundation

  • Centers of Excellence
  • Chapters
  • NPF Care Network
  • Medical Care & Research

American Parkinson Disease Association

  • Resources and Support
  • Research

Parkinson’s Disease Foundation

  • Research
  • Understanding Parkinson’s Disease
  • Living with Parkinson’s Disease

Michael J. Fox Foundation

  • Research
  • Resources & Information

Alzheimer’s Disease

Alzheimer’s Association

  • Research
  • Chapters
  • Support Services

Caregiver Resources


  • Home and Family Caregiving
  • Care for the Caregiver

Caregiver Action Network

  • Forums
  • Tips for Caregivers
  • Coping
  • Resources

Other Neurological Disease Resources

Epilepsy Foundation

  • Living with Epilepsy
  • Programs and Resources

National Multiple Sclerosis Society

  • Clinical Research
  • Information

ALS Association

  • Research
  • In Your Community
  • Information

American Stroke Association

  • Community Resources
  • Information
  • Warning Signs
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